What we are doing - Psychosocial well-being after stroke

We will use this page to post updates on the research as we move through the different phases, and provide links to our publications and research summaries.

Literature reviews

We wanted to find out what people have said about how they experience well-being after a stroke here in Aotearoa. Through reviewing the qualitative literature on life after stroke in Aotearoa, four things appear to be key to experiencing well-being:

  • Strong connections
  • Sense of self
  • Stable in the present
  • A vision of the future

This paper has been submitted to a journal for publication.

We are currently completing a literature review of Māori experiences of life after stroke, drawing on published research and theses. This deepens our understandings and highlights Māori whakaaro (thoughts) of what is important, beyond what we found in our general review above. Aspects important for well-being include:

  • Whānaungatanga and connection;
  • Wairua and the upholding of mana;
  • One’s identity as Māori; and
  • Rangatiratanga

Whānau is particularly important in supporting well-being, for enhancing people’s wairua after stroke, and upholding mana. It is clear that stroke has a ripple effect on the well-being of others within the wider whānau that is often not recognised or acknowledged.

How is psychosocial well-being supported in stroke services?

We are currently talking to a wide range of people working across stroke services—from acute stroke wards through to GPs and community support workers who support people after they leave services. We are also talking with stroke whānau—people who have had strokes themselves, and the whānau who support them and are themselves affected by the stroke.673992

Topics we are talking about with participants

We have spoken with many whānau Māori about their experiences after stroke. We will analyse the kōrero and take the analysis back to all of the whānau for their reflections and considerations on what we should do next.

We will connect with Māori whānau in Auckland, and with Māori stroke clinicians and researchers. In this, we will seek their reflections on the research to date and will continue to explore what matters for well-being, and how they consider care practices and processes could be enhanced to support Māori stroke whānau to flourish.

We are mapping out what happens in services—all the work that goes on—and looking at where, within all of this activity, psychosocial well-being is addressed.

We will continue to talk to stroke survivors, whānau, and people working in stroke services throughout 2022 to build our understanding of psychosocial well-being in stroke care.

What are our next steps?

In 2022, we will build a deeper understanding of what is currently happening in care, what stroke survivors and whānau experience in stroke services, and what they need to support their long-term well-being. We need to learn more about how services are structured and funded, and how this impacts on what happens for patients.

We are already hearing what people think is working well in supporting well-being. We are also getting clear messages about what could be done differently to support the well-being of stroke survivors and whānau. We will take our research back to the communities involved—clinicians, stroke whānau and stroke managers—to explore their priorities for change.

In the final year of the project, we will develop resources to support psychosocial well-being. The exact nature of these, including who these will be for, will be determined (with stakeholder engagement) during the research process. Whilst there may be many resources that might be helpful, we will likely focus on one or two particular areas, given the resources we have to work with.

Would you like more information?

Just let us know! We are really happy to share information on a regular basis via email.

If you would like us to share any of the work we’re doing with your team (e.g. at an inservice), we’re really happy to explore this with you.

We can be contacted in the following ways:

  1. Email any enquiry to wellbeing.study@aut.ac.nz or
  2. Felicity Bright: felicity.bright@aut.ac.nz or
  3. BJ Wilson: bjwilson@aut.ac.nz

You can also Download our study flyer

Psychosocial well-being after stroke study

Supporting well-being after stroke to improve understanding and enhancing care.

Find out more