What we are doing - Psychosocial well-being after stroke

We are currently talking to a wide range of people working across stroke services—from acute stroke wards through to GPs and community support workers who support people after they leave services. We are also talking with stroke whānau—people who have had strokes themselves, and the whānau who support them and are themselves affected by the stroke.673992

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We have spoken with many whānau Māori about their experiences after stroke. We will analyse the kōrero and take the analysis back to all of the whānau for their reflections and considerations on what we should do next.

We will connect with Māori whānau in Auckland, and with Māori stroke clinicians and researchers. In this, we will seek their reflections on the research to date and will continue to explore what matters for well-being, and how they consider care practices and processes could be enhanced to support Māori stroke whānau to flourish.

We are mapping out what happens in services—all the work that goes on—and looking at where, within all of this activity, psychosocial well-being is addressed.

We will continue to talk to stroke survivors, whānau, and people working in stroke services throughout 2022 to build our understanding of psychosocial well-being in stroke care.

In 2022, we will build a deeper understanding of what is currently happening in care, what stroke survivors and whānau experience in stroke services, and what they need to support their long-term well-being. We need to learn more about how services are structured and funded, and how this impacts on what happens for patients.

We are already hearing what people think is working well in supporting well-being. We are also getting clear messages about what could be done differently to support the well-being of stroke survivors and whānau. We will take our research back to the communities involved—clinicians, stroke whānau and stroke managers—to explore their priorities for change.

In the final year of the project, we will develop resources to support psychosocial well-being. The exact nature of these, including who these will be for, will be determined (with stakeholder engagement) during the research process. Whilst there may be many resources that might be helpful, we will likely focus on one or two particular areas, given the resources we have to work with.